Tuesday, October 28, 2008

The looks

My son does not have a physical disability. I have not had the experience that some Moms have had with looks that people will give a child that has a disability. Since he has a Speech & Language disability, it is very hard for people to tell unless they ask him questions. His biggest problem right now is answering "How are you?". He will answer with his name or his age. This weekend we went to see the Monster Trucks and an elderly lady asked him how he was doing. He answered with his name and she gave this look of confusion. She then looked at me and I told her that he has a Speech & Language disability. She then gave the look that I have seen so many people give children with physical disabilities. It is so frustrating to see that look. We moved on to our seats, but I was still frustrated over it.

Then I started to question myself and what we have been teaching Logan. I have been working with him a lot on answering the questions "Who are you?", "What is your name", and "How old are you?". We haven't completely started on "How are you?", but I can definitely see how he can get them confused. We are working more on answer how we are doing, but it seems to be harder for him to grasp than the other questions. One of his daycare teachers mentioned that she thought he might have a Cognitive Learning disability. The speech therapists and teachers at his current school said that they do see some signs of that, but not enough to call it that. However, they have started to notice that he is showing aggressive body language when he can not find the right words to say.

So now they are suggesting Occupational Therapy. I have found out from his doctor that this could help him and possibly even prevent ADD or ADHD which might happen if we do not teach him early how to deal with different stressful scenarios. I told them to teach me how to deal with the looks I am getting now when Logan can not speak to another person the way a normal 4 yr old can. She told me you get used to it after a while, because the look you will remember a year from now or 2 years from now is the look on his face when he answers a question properly. I agree, because I can see his face right now when he was telling us about the Monster Trucks the day after the show. He was so super excited and had so much fun! Now we will continue our work on "How on you?".

5 comments:

Kay Klebba said...

I feel your pain. I have a son with Aspberger's Syndrome, which is a form of austism. He too responds to what is your name with "fine". He has to learn "social stories" to understand what to say and how to say it. I almost sounds as if your son has similar things going on. I know this is going to sound weird, but have you looked at food allergies? Regulating Cooper's diet and researching food allergies and these types of things helped us so much. Cooper had to have speech and language (still does actually) therapy and occupational therapy. It gets challenging. I too hate the "looks". In our perfect society, people want to see perfect children. The reality is that everyone usually has at least one child in their family that has challenges of some sort.

I will pray for you and your son. Take care, keep plugging along, it gets better. As for the "looks" , the people that matter to your son, accept him and love him for who he is. The others don't matter. I get plenty of looks, just roll with it.

God bless and keep you.

Kay Klebba
http://kayklebba.blogspot.com

Lisa said...

Hi Kay,
I am a supervisor of special education in a school system and would be interested in also knowing if your son's social interaction skills are average or behind others his age. Also, what Language test was given to him and what were his scores? I would like to offer some advice if you are interested.

Kay Klebba said...

Lisa,

Thank you. Cooper is below average, but improving so much since we have been "detoxing" him. He went from the 6th percentile socially to the 30th from Feb of 2007 to May of 2007. He is in fourth grade, ten years old and I would have to dig into his massive file to find the language tests given to him. He is in a great school system, Utica in Michigan and doing really well. Unfortunately, right now in math they are doing estimating which makes no sense to him whatsoever. Thanks for your help. You can reach me at my blog.

Kay Klebba
http://kayklebba.blogspot.com

tara @ kidz said...

Stopping by through momblogs and I'm glad I did. Love your blog! And I can totally relate to this post. Thank you for your perspective!

Kay Petty said...

Thank you everyone for the comments. We have been so busy working with him, I forgot about my blog for a little while. It does help me when I write, so I need to do it more often.